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Questionnaire Drawing

Kansas City Cardiomyopathy -12 Questionnaire

The KCCQ-12 is highly correlated with the original 23 item scale scores and preserves the validity, reliability, responsiveness, prognostic importance, and interpretability of the original instrument

Category Purpose Example
Trainee/Student Research Project A study for one’s thesis
Clinical User Using tools in routine care Using KCCQ in heart failure clinics
Academic Research doing NIH study To perform a research study funded by a grant from government, hospital, or foundation An NIH clinical trial
Industry Doing a Clinical Trial An industry funded trial A trial or observational study for drug or device approval or meeting regulatory requirements
Health IT Company A company wanting to integrate the instruments into their products A company selling the ability to collect questionnaires for a disease management program

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About the Kansas City Cardiomyopathy-12 Questionnaire

The 12-item Kansas City Cardiomyopathy Questionnaire (KCCQ-12) is a shortened version of the original 23-item KCCQ. It generates the Symptoms, Physical and Social Limitations, Quality of Life and Summary Scores, but not the Symptom Stability and Self-Efficacy scales. It is highly correlated with the original, as described here: https://www.ahajournals.org/doi/10.1161/CIRCOUTCOMES.115.001958.

       It was designed to decrease the response burden on patients to make it much more feasible for use in routine clinical care. On average, it takes 2-4 minutes to complete. It has been endorsed by the International Consortium on Health Outcomes Measurement to measure the value of heart failure care.

Please email all PAQ licensing requests directly to Dr John Spertus at spertusj@umkc.edu.

Outcomes Instruments, LLC is now an IQVIA Business. The KCCQ, KCCQ-12, SAQ, and SAQ-7 instruments may be licensed directly from IQVIA. Please click the Ok button to be redirected to the IQVIA COA Marketplace to submit a licensing request.